Standardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative - Université de Paris - Faculté de Santé Access content directly
Journal Articles Joint Bone Spine Year : 2024

Standardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative

Pascal Claudepierre
Hubert Marotte
Sophie Pouplin
  • Function : Author
Eric Senbel
  • Function : Author

Abstract

Introduction National and international scientific societies advocate for a regular, systematic, and standardized global evaluation of axial spondyloarthritis (axSpA) patients. However, there are no recommendations specifying the content of this global evaluation. This initiative aimed to propose a standardized reporting framework, using evidence-based and consensus approaches, to collect data on all domains of axSpA. Methods A literature review and consensus process involved a steering committee and an expert panel of 37 rheumatologists and health professionals. The first steering committee took place in March 2022 and identified the main domains for inclusion in the standardized report. A hierarchical literature review was conducted to identify items within these domains and tools for assessment. The items and tools for assessment were discussed and consensus was reached through a vote session during an expert meeting that took place in March 2023. Results The steering committee identified four main domains to include in the standardized reporting framework: disease assessment, comorbidities, lifestyle, and quality of life. Items and tools for assessment were adopted after the expert meeting. Additionally, recommendations regarding digital tools (websites, apps, social media) were provided. Conclusion This initiative led to a consensus, based on evidence and expertise, on a reporting framework for use during periodic systematic global evaluations of axSpa in daily practice.
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Wednesday, October 9, 2024
Embargoed file
Wednesday, October 9, 2024
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Dates and versions

hal-04564488 , version 1 (30-04-2024)

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Adeline Ruyssen-Witrand, Damien Caillet-Portillo, Aurélie Najm, Olivier Fogel, Athan Baillet, et al.. Standardized reporting for systematic global evaluation of axial spondyloarthritis: An evidence-based and consensus-driven initiative. Joint Bone Spine, 2024, 91 (5), pp.105733. ⟨10.1016/j.jbspin.2024.105733⟩. ⟨hal-04564488⟩
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